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Share your experiences with TGCT

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Share your TGCT/PVNS story!

Tenosynovial giant cell tumors (also known as pigmented villonodular synovitis) are benign tumors that can grow on joints, and cause damage to the surrounding tissue and structures of the body. Symptoms can include pain, swelling, and limitation of movement of the joint. 

People living with TGCT say this condition has changed their social lives, work, and recreation.

The impact of TGCT is different for everyone, which is why sharing your unique experience with this rare condition is so valuable.

This survey is designed for people who have a desire to provide insight, inspiration, and support, so that others can better understand what life is like with TGCT. 

You may even qualify for a special project if your survey answers meet our specific criteria!

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We take your privacy very seriously. We do not share, sell, or otherwise disclose Personal Information (including your e-mail address) without your prior consent.


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👋 Share your rare condition story!

There are more than 7,000 rare diseases registered with the National Organization for Rare Disorders and while each is unique, there are many commonalities that unite rare condition patients, families, caregivers and supporters. In the spirit of raising awareness of rare conditions, we would like to share your unique story.

Your experiences with treatment, giving and receiving support, and living with a rare condition have the power to help others.

Take the following survey to share your experiences. 

You may even qualify for a special project if your survey answers meet our specific criteria!

On Privacy
We take your privacy very seriously. We do not share, sell, or otherwise disclose Personal Information (including your e-mail address) without your prior consent.


Click the button below to get started!